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Collaborative research efforts and resources for MS and related diseases
Atlas of MS Database
The Atlas of MS Database, compiled by the MSIF with contributions from country coordinators worldwide, provides information and data on the epidemiology of MS and the availability and accessibility of resources for people with MS at country, regional, and global levels.
European BioMS Society
BioMS-eu is a collaborative network formed to improve the quality of CSF biomarker research in MS, leading to well validated assays for predicting prognosis, diagnosis, and monitoring therapeutic efficacy in neurodegenerative diseases.
International Multiple Sclerosis Genetics Consortium
The IMSGC is a collaboration among MS genetics researchers worldwide who share data and resources so that large-scale genetic analyses can be performed.
MSBase is an ongoing, longitudinal, strictly observational registry open to all practicing neurologists worldwide that is establishing a unique international database of outcomes data in MS.
NARCOMS is a global registry for multiple sclerosis research, treatment, and patient education that has an active database of more than 35,000 persons with MS.
Sonya Slifka Longitudinal Study
The Sonya Slifka Longitudinal Study followed a representative sample of more than 2000 people with MS; qualified investigators may apply to the National MS Society to use data and/or blood samples from this study for research projects.
Sylvia Lawry Centre Clinical Trials Data Repository
The database, which is available to qualified researchers, contains anonymized details of MS patients worldwide who have participated in the placebo arms of major clinical trials as well as from numerous academic and other studies.
Nonprofits for MS and related diseases
Accelerated Cure Project for Multiple Sclerosis
Accelerated Cure Project for MS (ACP) is a nonprofit organization whose mission is to accelerate efforts toward a cure for MS by rapidly advancing research that determines its causes and mechanisms.
Can Do Multiple Sclerosis
A national nonprofit organization, Can Do MS (formerly The Heuga Center for MS) is a leading provider of innovative lifestyle empowerment programs that empower people with MS and their support partners to transform and improve their quality of life.
Consortium of Multiple Sclerosis Centers
CMSC provides leadership in clinical research and education; develops vehicles to share information and knowledge among members; disseminates information to the health care community and to persons affected by MS; and develops and implements mechanisms to influence health care delivery.
EMSP is the umbrella organisation for 37 MS societies from 34 European countries, representing their interests at the European level and working to achieve its goals of high-quality equitable treatment and support for people with MS throughout Europe.
Guthy-Jackson Charitable Foundation
The Guthy-Jackson Charitable Foundation is dedicated to funding basic science research to find answers that will lead to the prevention, clinical treatment programs, and a potential cure for neuromyelitis optica spectrum disorder.
International Organization of Multiple Sclerosis Nurses
The IOMSN is the premier international organization focusing on the needs of nurses involved with MS care, education, research, and advocacy.
MS Australia strives for a world without multiple sclerosis through quality research and for service excellence to people with multiple sclerosis and their carers.
Multiple Sclerosis Association of America
MSAA provides ongoing support and direct services to individuals with MS and the people close to them.
Multiple Sclerosis Foundation
The Multiple Sclerosis Foundation provides programming and support to keep people with MS self-sufficient and their homes safe, while their educational programs heighten public awareness and promote understanding about the disease.
Multiple Sclerosis International Federation
The Multiple Sclerosis International Federation is an international body linking the activities of national MS societies around the world.
The Multiple Sclerosis Resource Centre is a proactive and innovative charity, passionately committed to supporting anyone affected by multiple sclerosis through access to unbiased information and advice.
MSSI’s objective is to bring comfort to the lives of persons with MS in India and help improve their quality of life.
The MS Society is the UK’s leading MS charity, providing information and support, funding research, and fighting for change.
The Myelin Repair Foundation is a nonprofit research organization focused on accelerating the discovery and development of myelin repair therapeutics for MS.
The Nancy Davis Foundation for Multiple Sclerosis is dedicated to the treatment and ultimate cure of MS, and funds the Center Without Walls program, a selected network of the nation’s top MS research centers.
The National MS Society funds research activities spanning all research stages, including early discovery research, translational research that brings promising ideas forward into actual therapeutic solutions for testing, and clinical trials.
The TMA advocates for children, adolescents, and adults with neuroimmunologic disorders of the central nervous system, including the spectrum disorders of acute disseminated encephalomyelitis, neuromyelitis optica, optic neuritis, and transverse myelitis.
United Spinal Association
United Spinal Association is a national organization advocating for people with spinal cord injuries and disorders, including 5000 members with MS.
Other online disease research communities
The Alzheimer Research Forum, founded in 1996, is the web's most dynamic scientific community dedicated to understanding Alzheimer disease and related disorders.
The ultimate goal of the Pain Research Forum is to foster discussion and collaboration that will speed the acquisition of new knowledge and its translation into novel treatments for chronic and neuropathic pain.
PD Online Research is a web-based community of Parkinson disease scientists, clinicians, healthcare providers, drugmakers and funders.
SRF is intended to bring together scientists working specifically on schizophrenia, scientists researching related diseases, and basic scientists whose work can shed light on these diseases.
SFARI's mission is to improve the diagnosis and treatment of autism spectrum disorders by funding, catalyzing and driving innovative research of the greatest quality and relevance.
Research and clinical care centers for MS and related diseases—International
Research and clinical care centers for MS and related diseases—US
University of Miami Multiple Sclerosis Division (Miami, FL)
University of Michigan Multiple Sclerosis Center and the Holtom-Garrett Neuroimmunology Laboratory (Ann Arbor, MI)
University of Pennsylvania Multiple Sclerosis Center (Philadelphia, PA)
University of Rochester Medical Center (Rochester, NY)
University of Texas Health Science Center at Houston Multiple Sclerosis Research Group (Houston, TX)