MS Patient, Ph.D.: PPMS: A New Hope?
A blog post at a site run by UK MS researchers begins in a way that brings...
Clinical Research, People
MS Patient, Ph.D.: Is 23andMe Doing It Right?
I was conflicted about whether direct-to-consumer DNA analysis services were a good idea, a stance I seemingly share with the FDA
I was conflicted about whether direct-to-consumer DNA analysis services were a good idea, a stance I seemingly share with the FDA
As an MS patient, the last few years have been very exciting on the genetic frontier of...
Clinical Research
MS Patient, Ph.D.: MS and Vitamin D: What’s a Patient to Do?
In the face of suggestive but inconclusive studies, Emily Willingham explains why she chooses to take 5,000 IU of vitamin D daily and vows to stop declining her mother’s offer of cod liver oil
In the face of suggestive but inconclusive studies, Emily Willingham explains why she chooses to take 5,000 IU of vitamin D daily and vows to stop declining her mother’s offer of cod liver oil
The answer is easy for me: When I first started having symptoms, no one tested my...
Clinical Research, People
MS Patient, Ph.D.: Home From the Hospital
Recovering from the side effects of hospital interventions is just as important as relapse management in resuming normal activities
Recovering from the side effects of hospital interventions is just as important as relapse management in resuming normal activities
After my first relapse, I was aware that I was going to have to deal with...
People
A New MS Journal
Neurology: Neuroimmunology & Neuroinflammation will be published by the American Academy of Neurology
Neurology: Neuroimmunology & Neuroinflammation will be published by the American Academy of Neurology
There's a new journal in town...
Clinical Research, Drug Development, Laboratory Research, Methods
MS Patient, Ph.D.: That’s Not PPMS? Well, It’s My PPMS
Consider individual differences in disease manifestation before dismissing a symptom as unrelated to MS
Consider individual differences in disease manifestation before dismissing a symptom as unrelated to MS
I’ve seen many neurologists. And my experiences with these different neurologists have been, shall we say...
People
MS Patient, Ph.D.: Setting the Right Expectations for Recovery
This means finding a careful balance between hope and information
This means finding a careful balance between hope and information
I had been at the hospital for a few days when I was given...
People
MS Patient, Ph.D.: The Neuro Exam Chronicles
The good, the bad, and the ugly of neurological exams
The good, the bad, and the ugly of neurological exams
I had my first-ever neurological exam in 2008, having been referred to a neurologist after I...
Methods, People
MS Patient, Ph.D.: Is It Too Early to Get Excited About the BCG Vaccine?
I have concerns about the explanation for the results of the study, and my own experience suggests widespread use of BCG may have unintended consequences.
I have concerns about the explanation for the results of the study, and my own experience suggests widespread use of BCG may have unintended consequences.
The new BCG vaccine study caught my attention for all the wrong reasons. The thing is, I have a knee-jerk reaction when...
Clinical Research, Drug Development
MS Patient, Ph.D.: Greetings From Limbo Land
Patients traveling the PPMS diagnostic path often simply move from one part of limbo land to another
Patients traveling the PPMS diagnostic path often simply move from one part of limbo land to another
Clinicians know that primary progressive multiple sclerosis is currently without treatment, but patients are even more acutely aware...
People